Goal One ✔️
I wanted to baclofen pump because my spasticity has gotten so bad that it's hard for me to get outside and do anything that I really like to do before my accident happened. It's crazy that specificity could get in the way of so much! I completed this goal January 2017! I'm so proud to know that at least one of my goals has been completed this year!
The stoma will give me the independence of not needing someone there to empty my bag when it gets full. I wear a foley catheter 24/7 because it's just easier than having to cath me every four hours. There's always drawbacks to everything and a few drawbacks to wearing the foley so long is: I keep constant UTIs; Sexual activity with a foley is painful; The foley line is breaking down my legs; My insides are also being broke down; and the most important is I won't leak and cause embarrassment because of incontinents.
The ace procedure will help me not have to worry about having a bowel movement unexpectedly. Someone with my injury knows that we can't control our bowel and it can comes when we least expect it too. It can be so embarrassing when in public. It could also be embarrassing if it decides to come during sexual activity. I'm not sexually active but one day it will get there and I want to have some control over this first. I'll also have less accidents.
I have so many doctors appointments and things that I want to do for myself that I can't because I'm not able to transport myself. If I drive I'm going to have so much more independence to do what I want too do. I'll be able to go see who I want and all the things someone who is twenty two years old should be able to do alone. I see all of those I went to school with out and about with lives of their own and homes of their owns. I'm still stuck having to live with someone and having to have someone help me more than I want too.
My disability prevents me from just going out and getting a job like everyone else is able too. Employers aren't very aware of how my spinal cord injury affects my movement but it doesn't effect the way my brain works. I'm still never going to be able to be normal. I breed sugar gliders because I love these little creatures and I love watching the faces of joy they bring to others who have them. When I complete my breeding program I'll have another income coming into my hands. Disability is all the income I have right now and it's just not enough to sustain one person on its own.
Goal Six ✔️
My wheelchair is four years old and when you live in the chair like I do it gets worn out. When I first come out with a standing my chair I was so excited because trying to get me out of my chair and into a stander is very dangerous no matter how many people are there to guard you. With my standing wheelchair I would be able to stand out whenever I want and be able to help keep my bones healthy by putting pressure on them. So I've been trying to get Medicare to approve my standing wheelchair. Well in January the chair was approved!! I got my wheelchair. I currently have a wound on my foot that has to heal before I can get approval to stand on my broken hip. No matter how long it takes I do have the chair to be able to stand, now I just have to heal up to stand again. :)
So when my accident first happened the medical bills started piling up, which in turn started sending my credit in a downward spiral. I want to be able to get a loan if I ever need it so I have to clean my credit up a lot. The first place to start is paying off the medical bills a little at a time. I've set up a plan to slowly pay off the debt monthly.