I'll be twenty two years old in fifteen day! So here's a few pictures from my twenty two years on this earth.
I have been so busy since I've come home from the hospital but I have not been able to film any videos for my YouTube channel. I apologize greatly for that, I will get to that hopefully tomorrow. It is been crazy here. My old wheelchair is not charging so I'm having to basically stay on the charger most of the day. I get my new chair Tuesday which will be so exciting! Everyone has been sick around my house as well.
I have been trying to get some stuff done so I can go back to school for my graphic design. It goes well with my photography which I'm going to be starting to take actual clients on during the spring and summer months. I have also been trying to get everything done to learn to drive so that when this baby comes I will be able to drive myself to and from the places I need to go.
I started physical therapy back Thursday but they only done my evaluation so I don't know exactly what we're going to be doing yet but I'm hopeful that I can learn to do everything I'm wanting to do. I have so many things I want to do but I don't have the want too to get them done. This sucks.
This is the sore I have under my pinky toe on my right foot before I went into the hospital.
This is the sore the day after I came home from the hospital.
I don't know if anyone else think so but it to me it looks like it is worse now that I came home from the hospital where I had wound care to take care of it.
I found out Friday that my new wheelchair has been approved by Medicare! I am so excited to get it on order so that I can have it by April of this year. It will include a standing feature so that I can get my bones healthy again said that if there is a cure I will be able to start walking on my strong bones.
my wheelchair will be pink instead of yellow like the one in the picture I will keep everyone updated as much as possible on the progress of the wheelchair purchase. The wheelchair that I am using right now is not wanting to charge right so I am having to charge it about every2 to 3 hours and it is driving me insane!
So January 6th I went to Baton Rouge to have the baclofen pump surgery, all this is to implant the baclofen pump in my stomach and a catheter fetid to my spine that delivers liquid baclofen straight into my spinal cord. We had to leave at 2:00 AM that morning to be there by 5:00 AM so that they could prep me for surgery by 7:00 AM. I actually did get some sleep that night but made sure that I would be up in time!
I was very nervous because of course anytime I get put under I have a chance that I will never wake up again. Everything went fine and a surgery only lasted about an hour! The day before I ended up cutting about 5 inches off of my hair! This was the first time I've Cut a significant amount of hair off of my length. I actually really love the length of my hair now and I'm probably never going to let it get much longer than it is.
The first few days that I was in the hospital I was fighting a fever over 102° because of a bladder infection that was so bad that they were pulling blood clots out of my bladder. We finally put me on anabiotic's that cleared everything up and I have an appointment with a urologist in February. I have decided to go with the stoma procedure and the procedure where they can clip my colon and put a port on the outside of my skin for my bowel program to be emptied all at one time.
while I was there at the neuromedical Center I participated in three hours of physical therapy a day! I was completely exhausted most of the time because I was not used to doing this much physical therapy every single day. I had an hour and a half of physical therapy and an hour and a half of occupational therapy. I have learned a lot of things about my body and the muscles that I have used of without spasticity and I have learned a lot to be able to build up the muscles that I need in order to reach the goals I have set this year.
The baclofen pump has been one of the greatest decisions I've made in a really long time! I recommend anyone getting it that is having trouble with their spasticity being out of control or just the specificity getting in the way of gaining independence. I do not have more independence right now but as long as I continue to gain strength I will be able to gain more independence slowly. I am very excited for my future! This is something that I have not said in a very long time. We have also found out that Jessica is pregnant once again and we will be welcoming a new baby into the house in September or October!
One year ago today I lost my mom, my caregiver, my best friend, and my partner in crime. I can't believe it's already been a year but it also feels like a lifetime. I miss everything about you momma but I know your in a better place. Please continue watching over me. I hope I'm making you proud! If I knew that a year ago would be the last time I'd talk to you I'd made you talk to me forever. I would have never let you go. You done what you thought at the time was best for me. You felt like you didn't have any other choice but take your own life. I'm sorry that you felt like that was your only choice.
In four days I go to Baton Rouge to have the baclofen pump put in, I will be there for a week to 10 days. I was told that I would be there longer but I am very hopeful that I will be home sooner than expected. I will miss everyone while I'm gone because I most likely not be blogging very much while I'm gone. If I do intense physical therapy on me like they said they're going to I will be more exhausted than I will be ready to blog.
MadiJo has pneumonia in both lungs and had to be taken to the hospital overnight to be given IV anabiotic's. They are hoping that they will be able to let her come home tomorrow but they are not sure. We all hope that she will come home because she is what makes everyone around here happy. She is one of the only reasons I have been happy since my depression has started and I hate seeing her so sick.
Paralyzed from the neck down after an ATV rollover at 14, April Otwell is beating the odds the doctors gave her. She's a blogger, fantasy writer, college student, sugar glider guardian and spinal cord injury survivor. She's even writing her first fiction novel!